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Protection Resources

Genetic Information Protection Resources

 

Further information about HIPAA:  http://www.hhs.gove/ocr/privacy/

Resource to guide your discussions with Patients: 

National Coalition for Health Professional Education in Genetics Web-based Guide and PDF:
http://www.nchpeg.org/index.php?option=com_content&view=article&id=97&Itemid=120
http://www.nchpeg.org/documents/GINA_discussion_guide_2june10.pdf

Resources for your Patients:

Web-based Guide to GINA: http://www.GINAhelp.org
Patient Information Sheet: http://ginahelp.org/GINA_you.pdf
Myriad Genetic Discrimination Sheet

General Resources:

GINA Resources from the Genetics and Public Policy Center at Johns Hopkins University
http://www.dnapolicy.org/gina/

National Human Genome Research Institute (NHGRI) Genetic Discrimination Fact Sheet
http://www.genome.go/10002328

Equal Employment Opportunity Commission (EEOC) GINA Fact Sheet
http://www.eeoc.gov/laws/types/genetic.cfm

Federal Discrimination Laws other than GINA (HIPAA, ADA, others)
http://www.genome.gov/12513979

Executive Order to Prohibit Genetic Discrimination in Federal Employment
http://www.eeoc.gov/eeoc/history/35th/thelaw/13145.html

State Privacy Laws:

http://www.ncsl.org/programs/health/genetics/prt.htm
http://www.ncsl.org/programs/health/genetics/ndishlth.htm
http://www.ncsl.org/programs/health/genetics/ndiscrim.htm

 

 

 

 

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