Protection Resources

Genetic Information Protection Resources


Further information about HIPAA:  http://www.hhs.gove/ocr/privacy/

Resource to guide your discussions with Patients: 

National Coalition for Health Professional Education in Genetics Web-based Guide and PDF:

Resources for your Patients:

Web-based Guide to GINA:
Patient Information Sheet:
Myriad Genetic Discrimination Sheet

General Resources:

GINA Resources from the Genetics and Public Policy Center at Johns Hopkins University

National Human Genome Research Institute (NHGRI) Genetic Discrimination Fact Sheet

Equal Employment Opportunity Commission (EEOC) GINA Fact Sheet

Federal Discrimination Laws other than GINA (HIPAA, ADA, others)

Executive Order to Prohibit Genetic Discrimination in Federal Employment

State Privacy Laws:





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